Little Hallingbury couple hosting fundraising evening for East Anglia Children’s Hospices in memory of their daughter

PUBLISHED: 09:02 29 June 2018 | UPDATED: 09:02 29 June 2018

The Clemence family: (L-R) Sophia, Charlotte, Grant and  Nancy Victoria. Picture: CONTRIBUTED

The Clemence family: (L-R) Sophia, Charlotte, Grant and Nancy Victoria. Picture: CONTRIBUTED

Archant

Little Hallingbury parents whose baby daughter died just days after she was born are hosting an evening of music and fireworks in aid of the charity which supported them.

Fleur Clemence had a rare heart condition. Picture: CONTRIBUTEDFleur Clemence had a rare heart condition. Picture: CONTRIBUTED

Charlotte and Grant Clemence will hold their eighth annual Music for a Summer Evening event for East Anglia’s Children’s Hospices (EACH), which provides care for children with life-threatening conditions across Essex, on July 7, at their home.

Charlotte gave birth to twins Fleur and Sophia on May 4, 2011, and days later Fleur who had a rare heart condition, died.

The parents knew Fleur would not live for long, as her condition, hypoplastic left heart syndrome had been detected during a 20-week scan.

Throughout Fleur’s short time with her parents, staff from EACH visited the family at home to help with care.

Since then Charlotte and Grant, who also have another child called Nancy Victoria, have raised more than £100,000 for EACH, which relies on donations for most of its income.

Charlotte said: “EACH was such a huge support to us both during the time we had Fleur and after ,I can’t thank them enough. What we can do, though, is raise money for EACH to help other children and their families make the most of their very precious time together.”

The left ventricle of Fleur’s heart was severely underdeveloped and her aorta was too small to pump blood around her body effectively.

Members of Rock Choir, the contemporary choir of the UK, will be performing and the evening will finish with fireworks.

EACH also provides care and support for children and young people in Cambridgeshire, Norfolk and Suffolk. The charity relies on donations for the majority of their income, needing to raise more than £7.5 million each year from fundraising and its shops. £10 million is also needed to develop hospice services in Norfolk, which includes a new hospice.

The event will be at Little Hallingbury Place, in Wrights Green Lane, with doors opening at 6pm for a 7pm start.

Tickets are £15 for adults.

For further information and ticket sales e-mail info@charlotteclemence.com or call 07956 847483.

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